Co-hosted by the Australian Centre for Health Law Research (ACHLR), Associate Professor Bernadette Richards will explore the challenges of trustworthy data governance.
Abstract: Technology is empowering advances in healthcare, extending beyond the clinical interface to the collection, collation and use of personal data. Whilst this advance has the potential for population-wide benefits, there are legal and ethical challenges which carry the risk of both individual and collective harms.
This presentation will explore the challenges of trustworthy data governance and ask whether the existing approach will achieve the sometimes competing goals of building and maintaining social trust, improving and advancing healthcare and protecting individual patient interests.
Different governance models will be considered and the concept of ethical debt introduced. Underpinning this discussion will be the twin themes of trust and social license and we will consider whether trustworthy data governance is possible or does this seemingly inevitable march of technology mean the inevitable accrual of ethical debt.
Posted 9 March 2022